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Friday, July 31, 2009

Clarification



Thank you to everyone who has commented on the previous post. I am truly thankful for so many good friends who love my kids so much and are praying for us.

After reading the post last night, Matt said, "I just hope people don't think they are worse than they are." And I understand what he means.

I think in my venting, it might have made it sound like a "hopeless" situation or that we are extremely discouraged. I was just stating the emotions I have gone through up to now on this journey.

But I want to clarify that PDD-NOS is not classic autism. It is on the autism spectrum of disorders but is very high functioning. Basically, neither Josh nor Darci qualified in enough categories or criteria to be diagnosed with classic autism. They have some similar characteristics that place them on the spectrum.

It's also interesting that even though they have the same diagnosis, they're individual diagnosis is still very different. They both struggle in different ways...which continues to show the unique qualities that God has designed into them.

The team that gave us the diagnosis at the ASD clinic were very encouraging that with therapy, Josh and Darci will do very well. They have both shown a great response to the speech therapy they have been getting this summer at Easter Seals.

So, at this point, I am learning that they both learn visually, they do better when we try to explain things to them visually rather than just aurally. We are working with building their speaking skills.

So, even though there are times when it is hard, the diagnosis is a good thing because now we know better how to work with them and to help them learn. Thank you everyone for your prayers. We still appreciate those! But please don't think we are all wearing black and mourning with the curtains drawn. We are still the same family we were before...just now with more information.

Thank you to all you great friends! We are blessed to have you in our lives!

-Bek

9 comments:

Heidi said...

Good post. I am glad you are the same family...like I've said before...even better, because with the info you can only get better.

love you ALL!

Carmen O. said...

exactly what i meant by my last commemt bekah! its information - something that can only hlp!

Jessica said...

I love how you put it "we are still the same family we were before, now just with more information" Perfectly put! I've always loved how open you are about life...friends like you make it easier to be open with.

Jami said...

Bek, I love you and your family so much! You've been on my heart a lot lately and in my prayers. I now know how to pray more specifically. I'm always here for you if you need anything.

Thanks for sharing your heart - God has certainly been glorified through you and I know He will hold you through this time.

I LOVE you, my friend!

christine said...

I don't know your children personally but know they've been blessed with parents who place their trust in God. May you feel His presence/peace as you continue to raise a family to His glory!

megs @ whadusay said...

Great post Bek - very well put!

I've gotta think, God has a plan for your kids in this and He has one for you. It seems like your "platform" will expand in a new way through this - introducing you to new people, etc. that you might not have met before.

You have been such a good example to me, I gotta think God will use you in the lives of so many people you come in to conatct with that you wouldn't have before those "letters" came into the picture.

I don't know if any of that makes any sense, regardless I'm thankful for you and will continue to pray.

smw said...

i didn't think you were pulling down your shades. i totally understood that even though it's not a life sentence, you've got to be feeling a lot of emotions. but this post did answer a lot of questions i was asking in my head today as i was working around the house.

love you guys so much.

Mrs. Hany said...

you kind of cracked me up with the "wearing black/curtains drawn" comment, I think we have all interacted with your babies enough to know what cool kids they are (Grace still talks about the time when they all came over). Its okay to be sad and let us know your needs so we can lift you up in prayer. Again we love you guys!

Anonymous said...

Rebekah,
I have been off of the blogs for about a week...so i am on catch up!
God is good all of the time. Your lives are and will be richly blessed. Your children are so fortunate to have such caring and loving parents.
Sometimes our biggest concerns turn out to be our greatest blessings.
Be so thankful that you have a diagnosis and you have such good direction in how to help Josh and Darci.
God will direct you each step of the way.

You are all loved,
A. Barb